Review Article
Challenges Experienced by Caregivers in Communicating with Children with Severe to Profound Intellectual Disabilities
Emily Kanyane,
Nonhlanhla Maseko*
Issue:
Volume 13, Issue 3, June 2024
Pages:
46-55
Received:
30 January 2024
Accepted:
7 April 2024
Published:
17 May 2024
Abstract: Background: Children with severe to profound intellectual disabilities (SPID) may have complex and numerous disabilities, such as intellectual limits and severe deficits in bodily functions. This disorder is typified by issues with speech, language, mobility, agility, and emotional issues providing quality education in appropriate special care centres for children who present with such complex conditions is challenging. Objective: This study explored and described the experiences of caregivers in communicating with children with severe to profound intellectual disabilities in selected special care centres in Gauteng Province. Method: This study followed a qualitative approach and data collection was gathered through in-depth semi-structured interviews, observations in the classroom corroborated children and caregiver`s communication behavior, and document analysis. Eight caregivers were purposively selected to participate in the study. The theory underpinning this study are Ubuntu and Attachment theories. The theories provided the study's foundation and emphasized caring as the central component and influence communication. Result: The thematic analysis revealed the key areas of support needs. The following themes emerged and are as follows: Communication strategies used for children with SPID and, experiences of caregivers in supporting children with SPID. Through these themes the research questions were answered. Conclusion: The study revealed that caregivers' inadequate communication abilities prevent them from responding to the needs of children with SPID. To meet the communication needs of children with SPID, communication requires, relevant communication devices or resources, collaboration with other stakeholders and a qualified trained caregiver.
Abstract: Background: Children with severe to profound intellectual disabilities (SPID) may have complex and numerous disabilities, such as intellectual limits and severe deficits in bodily functions. This disorder is typified by issues with speech, language, mobility, agility, and emotional issues providing quality education in appropriate special care cent...
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Case Report
Person Centred Care in Neurological Rehabilitation: A Case Study and Critical Reflection
Mark Wilkinson*
Issue:
Volume 13, Issue 3, June 2024
Pages:
56-63
Received:
17 April 2024
Accepted:
20 May 2024
Published:
19 June 2024
DOI:
10.11648/j.ajns.20241303.12
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Views:
Abstract: Healthcare systems and organizations consider maintaining and improving the quality of their service provisions whilst also being mindful of strategies to mitigate identified gaps in their clinical services. One such approach that has found favour among healthcare teams and institutions is that of person centered care. Person centered care places emphasis on situating the individual at the core of the decision-making process, identifying, and illuminating what is of greatest importance to the concerned person. The approach fosters a belief in equal and collaborative goal setting between the person and their healthcare team, respecting the individual’s needs and their preferences as people. One area where this approach can be adopted is that of neurological rehabilitation. The ethos of mutual respect and partnership between the individual and the multidisciplinary team can guide and inform the process of rehabilitation. This paper aims to deliver a critical appraisal of the application of the principles of person centered care in neurological rehabilitation. This will be referenced to a clinical scenario involving a young person with a stroke. The case will link the theory of person centered care discussing the models and frameworks realised in the clinical story. This will lead to a discussion and conclusion on the value of person centered care for people, professionals, teams, and organizations.
Abstract: Healthcare systems and organizations consider maintaining and improving the quality of their service provisions whilst also being mindful of strategies to mitigate identified gaps in their clinical services. One such approach that has found favour among healthcare teams and institutions is that of person centered care. Person centered care places e...
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