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Volume 10 , Issue 4 , August 2021 , Pages: 191 - 200
In the Eye of the Hurricane - A Qualitative Study on What Is at Stake for Close Family Members to Patients Hospitalized with COVID-19
Camilla Bernild, The Heart Center, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark
Malene Missel, Department of Cardiothoracic Surgery, the Heart Center, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark
Ilkay Dagyaran, Department of Infectious Diseases, the Heart Center, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark
Signe Westh Christensen, The Heart Center, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark
Selina Kikkenborg Berg, The Heart Center, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark; National Institute of Public Health, University of Southern Denmark, Odense, Denmark; Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen, Copenhagen, Denmark
Received: Jun. 14, 2021;       Accepted: Jun. 22, 2021;       Published: Jul. 2, 2021
DOI: 10.11648/j.ajns.20211004.11        View        Downloads  
Abstract
COVID-19 causes patient trajectories that are sudden, unpredictable and imbedded in a worldwide panic as well as lack of medical experience and knowledge. This study aims to understand how close family members to patients hospitalized with COVID-19 are affected by the situation. Individual, in-depth interviews with twelve close family members to patients hospitalized with COVID-19 were conducted. The interviews were analyzed with a hermeneutic approach using reflexive methodology. Theoretical conceptualization ensured a critical interpretation. Three empirical themes were identified: fear and unpredictability, not being able to be there and being the “key caregiver”. Family members´ fear is compounded as the whole world is preoccupied with the same fear and uncertainty about COVID-19. Due to the volatile situation, a shift in coping strategies throughout the trajectory was illuminated as well as an ambivalence towards the health system´s treatment regime on COVID-19 implying a total separation between the patient and their close family member. In conclusion, close family members of patients hospitalized with COVID-19 are in a vulnerable situation, characterized by a high degree of unpredictability and seriousness causing fear of losing their loved ones, as well as powerlessness due to visiting restrictions. Hospitalization with COVID-19 is an unpredictable situation, where the family members are separated from their loved ones. Family members are dependent on the communication with health care professionals. Therefore, talking to family members during COVID-19 must be prioritized and it is found necessary to develop relevant and systematic practices for communication and collaboration practices.
Keywords
2019-nCoV, COVID-19, Coronavirus, Qualitative Study, Family, Close Family Members, Hospitalization
To cite this article
Camilla Bernild, Malene Missel, Ilkay Dagyaran, Signe Westh Christensen, Selina Kikkenborg Berg, In the Eye of the Hurricane - A Qualitative Study on What Is at Stake for Close Family Members to Patients Hospitalized with COVID-19, American Journal of Nursing Science. Vol. 10, No. 4, 2021, pp. 191-200. doi: 10.11648/j.ajns.20211004.11
Copyright
Copyright © 2021 Authors retain the copyright of this article.
This article is an open access article distributed under the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/) which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
References
[ 1 ]
World Health Organization (WHO). Coronavirus disease (COVID-19) Situation Report – 169. 2020.
[ 2 ]
El-Zoghby SM, Soltan EM, Salama HM. Impact of the COVID-19 Pandemic on Mental Health and Social Support among Adult Egyptians. J Community Health. 2020 Aug; 45 (4): 689–95.
[ 3 ]
Wang W, Tang J, Wei F. Updated understanding of the outbreak of 2019 novel coronavirus (2019-nCoV) in Wuhan, China. J Med Virol. 2020 Apr 12; 92 (4): 441–7.
[ 4 ]
Sohrabi C, Alsafi Z, O’neill N, Khan M, Kerwan A, Al-Jabir A, et al. World Health Organization declares global emergency: A review of the 2019 novel coronavirus (COVID-19). Int J Surg. 2020; 76: 71–6.
[ 5 ]
Zhai P, Ding Y, Wu X, Long J, Zhong Y, Li Y. The epidemiology, diagnosis and treatment of COVID-19. Int J Antimicrob Agents. 2020; May; 55 (5): 105955.
[ 6 ]
Sim K, Huak Chan Y, Chong PN, Chua HC, Wen Soon S. Psychosocial and coping responses within the community health care setting towards a national outbreak of an infectious disease. J Psychosom Res. 2010 Feb; 68 (2): 195–202.
[ 7 ]
Missel M, Bernild C, Westh Christensen S, Dagyaran I, Kikkenborg Berg S. The marked body – a qualitative study on survivors embodied experiences of a COVID-19 illness trajectory. Scand J Caring Sci. 2021; Mar 18. doi: 10.1111/scs.12975.
[ 8 ]
Roy D, Tripathy S, Kar SK, Sharma N, Verma SK, Kaushal V. Study of knowledge, attitude, anxiety & perceived mental healthcare need in Indian population during COVID-19 pandemic. Asian J Psychiatr. 2020 Jun; 51: 102083.
[ 9 ]
Mazza C, Ricci E, Biondi S, Colasanti M, Ferracuti S, Napoli C, et al. A Nationwide Survey of Psychological Distress among Italian People during the COVID-19 Pandemic: Immediate Psychological Responses and Associated Factors. Int J Environ Res Public Health. 2020 May; 17 (9): 3165.
[ 10 ]
Lima CKT, Carvalho PM de M, Lima I de AAS, Nunes JVA de O, Saraiva JS, de Souza RI, et al. The emotional impact of Coronavirus 2019-nCoV (new Coronavirus disease). Psychiatry Res. 2020 May; 287: 112915.
[ 11 ]
Missel M, Bernild C, Christensen SW, Dagyaran I, Berg SK. It’s Not Just a Virus! Lived Experiences of People Diagnosed With COVID-19 Infection in Denmark. Qual Health Res. 2021 Feb; 104973232199036.
[ 12 ]
Wright, L. M. & Leathey M. Nurses and families: A guide to family assessment and intervention. 6th ed. F. A. Davis Company; 2013.
[ 13 ]
Luttik ML et. a. The COVID-19 Pandemic: A Family Affair. J Fam Nurs. 2020 May; 26 (2): 87–9.
[ 14 ]
Polit DF, Beck CT. Nursing research: generating and assessing evidence for nursing practice. 11th ed. Wolters Kluwer; 2020.
[ 15 ]
Gadamer H-G. Truth and Method. London: Sheed & Ward; 1989.
[ 16 ]
Alvesson M, Skoldberg K. Reflexive Methodology - New Vistas for Qualitative Research. 2nd ed. SAGE Publications; 2009.
[ 17 ]
Habermas J. The Theory of Communicative Action - The Critique of Functionalist Reason. 5th ed. Beacon Press; 2004.
[ 18 ]
Rolland JS. Helping Couples and Families Navigate Illness and Disability - An Integrated Approach. first edit. New York & London: The Guildford Press; 2018.
[ 19 ]
Rolland JS. Parental illness and disability: A family systems framework. J Fam Ther. 1999; 21 (3): 242–66.
[ 20 ]
Stroebe M, Schut H. The Dual Process Model of Coping with Bereavement: A Decade on. OMEGA - J Death Dying. 2010 Dec; 61 (4): 273–89.
[ 21 ]
World Medical Association Declaration of Helsinki. JAMA. 2013 Nov; 310 (20): 2191.
[ 22 ]
Pascarella G, Strumia A, Piliego C, Bruno F, Del Buono R, Costa F, et al. COVID-19 diagnosis and management: a comprehensive review. J Intern Med. 2020 May 13; joim. 13091.
[ 23 ]
Habermas J. The Structural Transformation of the Public Sphere: An Inquiry into a category of Bourgeois Society. Cambridge: Polity Press; 1989.
[ 24 ]
Dale CM, Carbone S, Istanboulian L, Fraser I, Cameron JI, Herridge MS, et al. Support needs and health-related quality of life of family caregivers of patients requiring prolonged mechanical ventilation and admission to a specialised weaning centre: A qualitative longitudinal interview study. Intensive Crit Care Nurs. 2020.
[ 25 ]
Davidson JE, Jones C, Bienvenu OJ. Family response to critical illness: Postintensive care syndrome-family. Critical Care Medicine. 2012.
[ 26 ]
Embracing Carers. Embracing the Critical Role of Caregivers Around the World. 2017.
[ 27 ]
European Institute for Gender Equality. Gender Equality Index 2019. Work-life balance Informal care of older people, people with disabilities and long-term care services. 2019.
[ 28 ]
Davies L, LeClair KL, Bagley P, Blunt H, Hinton L, Ryan S, et al. Face-to-Face Compared With Online Collected Accounts of Health and Illness Experiences: A Scoping Review. Qual Health Res. 2020 Nov; 30 (13): 2092–102.
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